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Wednesday, May 6, 2009

Our great kids

I've decided that we have an overabundance of negative energy and worry surrounding us at the moment and that's causing us to lose sight of the many positives we're experiencing. It's time to count our blessings..so here's what's new and wonderful.

Tanya got a 95 on her book report, a stellar accomplishment! She is also turning into a darn good softball player and loves her first season of Little League.

Max is playing flag football and loves it...and he also is really enjoying playing outside with Madiyar in the evenings. Our couch potato is starting to enjoy golf, soccer, and the kind of mischief only a pair of boys can get into...think bodily humor.

Kate has attended her first semi-formal dance...she was beautiful in purple and had a blast with her girlfriends. She's also received an award at school. She took the national mythology exam along with 20 other students from her school....and was one of only 2 kids who was awarded a silver medal for scoring between 92-99%. She's wearing the medal proudly...and telling us all one myth after another.

Madiyar is speaking an incredible amount of English now...truly amazing how much his language has changed in the past few weeks. He's also relaxed, funny, and fun to be with...and he's getting along so well with the other kids, figuring out how to interact with each of them on their own terms. He still has his moments of testing...but they're fewer and farther between each day. He misses Aniyar and wishes he would come home soon...but he's still trying his best to trust us to be the parents.

Aniyar has been transferred to a new hospital, Franciscan for Children in Boston, and so far, we're impressed with the services there. Our insurance company stunned us all by authorizing this additional hospital stay for Aniyar even after the first hospital said they felt he was ready to come home...when his insurance coverage ran out. We spoke with an amazingly supportive insurance representative who went to bat for us to place Aniyar in a step down program, a less restrictive environment where we could see if his impulsive and aggressive behaviors were in fact more under his control. In the first hour as I was admitting him, Aniyar tried to run away from the unit twice and it became clear to everyone that he wasn't safe to come home yet. He's being assessed and his medication is being adjusted; so far, there hasn't been much change in his impulsive behavior and he's still aggressive at times. We at least feel that this hospital is trying to respond to his needs and they are connecting us with support services for the whole family. We are starting to bring Aniyar out of the unit on passes so he can visit with us all...this weekend, we'll try taking him off the hospital grounds to see how he does.

We're hanging in there and trying to keep life as normal as we can. As I write this, Tanya, Max, and Madiyar are playing baseball in an empty parking lot behind the house; Kate is reading, the dogs are snoozing and Craig is catching up on the news. Soon it will be time for baths and bed...and there will be stalling, laughing, hugs, and bedtime rituals to be observed. We'll tuck everyone in for the night and then get some rest ourselves. Tomorrow is another day...it's spring here in New England, my flower garden is coming to life and hope is in the air...to all of you who are keeping us in your thoughts and prayers, know that we appreciate it. You're renewing our spirits...

4 comments:

farmbeachgal said...

So glad to hear things are starting to look up a bit, Dee. I think the step-down unit sounds like a great plan for Aniyar. And this has been therepeutic not only for A but for the rest of the family, as well, as M learns to interact well with the others in the family. Keep strong, keep the faith, you're getting there.

Sandi said...

We are happy to hear that you are holding up and that Aniyar is somewhere that he is getting what he needs. The others kids sound like they are doing great. If you can post a picture of Kate in her dress from the formal I would love to see it. If there is anything that we can do, please let us know. We will call soon. Hang in there, stay strong, gets some rest and get lots of hugs from your kids.

farmbeachgal said...

Happy Mother's Day, Dee! You show us all how to marry determination, hard work, love and grace in one package. Keep up the good work!

Pat and Alli said...

I will keep your son and your family in my prayers.

Best wishes.

Allison